OPMD knowledgeable clinicians are hard to find. Does anyone want to share their recommended clinicians for OPMD here? Name, Town and State?
I would add in positive recommendations only.
We can help maintain a list as it develops
Sharon from ModSupport
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This might be a place to start https://www.mda.org/care/mda-care-centers It’s from the Muscular Dystrophy Association.
There is also the OPMD association which does maintain a list.
Hopefully this helps.
Sharon
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How can I edit to add that language?
Are you looking to edit your post? There’s a little pencil underneath your post that you can click on to edit.
Was there something else that you were looking to do?
Sharon