|
About the General category
|
|
1
|
1684
|
May 21, 2016
|
|
Looking For Your OPMD Stories!
|
|
1
|
265
|
January 11, 2024
|
|
The things I miss most because of my OPMD
|
|
3
|
577
|
August 23, 2023
|
|
Orphan Drug Designation from the FDA for Benitec OPMD Treatment
|
|
6
|
1759
|
June 26, 2023
|
|
7 Things to Look for When Choosing a Doctor
|
|
0
|
437
|
May 4, 2023
|
|
Spotlight on Our Moderators
|
|
0
|
255
|
March 29, 2023
|
|
“Rare Diseases Doesn’t Have Us” – Foot and Float to Raise Awareness
|
|
0
|
333
|
March 28, 2023
|
|
When “Rather Rare” Becomes “Done Well”
|
|
0
|
307
|
February 22, 2023
|
|
Our New Ben’s Friends Classroom
|
|
0
|
340
|
January 25, 2023
|
|
Spotlight on Our Board Member: John Stamler
|
|
0
|
337
|
January 17, 2023
|
|
Ben’s Friends Members to Benefit from Cutting-edge Health Data Management Tool
|
|
0
|
320
|
January 16, 2023
|
|
Ben’s Friends Brings Learning About Patient Support to the Next Level
|
|
0
|
358
|
January 5, 2023
|
|
Spotlight on our Member: John aka Jokhere from Living with Polyneuropathy Community
|
|
0
|
226
|
December 27, 2022
|
|
Worldwide COVID-19 Response: Moving Forward Based on “Science”
|
|
0
|
403
|
May 19, 2020
|
|
Hanging Out is Helping Out: The Cycle of Helping Each Other at Ben’s Friends
|
|
0
|
222
|
December 23, 2022
|
|
Ben’s Friends Communities Can Help Advance Medical Treatments
|
|
0
|
191
|
December 8, 2022
|
|
Ben’s Friends Communities Provide Warmth and Friendship during COVID-19 Pandemic
|
|
0
|
186
|
November 24, 2022
|
|
Spotlight on Our ModSupport Member: Sharon a.k.a Stoney
|
|
0
|
158
|
November 24, 2022
|
|
Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD
|
|
0
|
195
|
November 17, 2022
|
|
Ben’s Friends inks partnership with ClozTalk
|
|
0
|
144
|
November 8, 2022
|
|
The Ben’s Friends Volunteer Family is Growing!
|
|
0
|
349
|
July 31, 2020
|
|
Rare Disease Diagnosis: Difficulties and Advancements
|
|
0
|
165
|
November 3, 2022
|
|
Global Genes’ Rare Daily website features Ben Munoz
|
|
0
|
192
|
November 2, 2022
|
|
Ben Munoz shares the story of Ben’s Friends in RARECast
|
|
0
|
158
|
November 2, 2022
|
|
Some of Ben’s Friends secrets to maintaining healthy communities
|
|
0
|
153
|
October 27, 2022
|
|
What’s Your And? Podcast features Scott Orn
|
|
0
|
182
|
October 27, 2022
|
|
Depression and Autoimmune and Chronic Illnesses
|
|
0
|
316
|
November 18, 2020
|
|
Benefits of Having a Rare Disease and Chronic Illness Support Group
|
|
0
|
217
|
October 20, 2022
|
|
Once Upon a Gene podcast Features Ben’s Friends
|
|
0
|
154
|
October 6, 2022
|
|
Ben’s Friends Lead Interns
|
|
0
|
147
|
October 5, 2022
|