Let's say hello to our newest member Sara!


Hi there Sara from beautiful Colorado! I am reading that one of your children along with your boyfriend have been diagnosed with OPMD. It must have been hard to first learn of this. How long has it been since the diagnosis? Is there anything specific that you’re looking for, such as treatment recommendations on here? Whatever it is, I hope we are able to help you to the best of our abilities.

In the meantime, how is your family doing? Have they been having any specific symptoms that you are thinking about? We would all love to hear back from you, and hope to quip you with the best knowledge to help them through this!

Best wishes