There is not a lot of activity on this site. Where is everyone who posted in the past. How are you doing now?
Hi tulip! We had spoken by email. I’m going to tag everyone and see if you get a response. You’ve definitely gotten views on this by the way
Hi tulip! I’ve been more involved in a Facebook group for OPMD and I also admin a large group of women who are estranged from their adult child.
I’m doing pretty well, was diagnosed about 10 months ago with SVT(supraventricular tachycardia). It just adds to the fun my legs have gotten much weaker but my swallowing is doing OK. I had my eyes done about 2 years ago, at the time I was barely able to see out of my left eye.
How are you doing?