This is the place for handy tips, advice about equipment and anything else that makes life easier for those of us with OPMD.
Let’s learn from each other!
No, I had an Cricopharyngeal myotomy. I also had multiple eyelid surgeries. None of these interventions are permanent. The muscles continue to weaken.
Good hearing from you Manuel. If I give anyone advice: put some money away for that rainy day when you will need an electric wheelchair.
There should be a section here just for sharing tips and suggestions from those with more experience.
I second that on getting an electric wheelchair. Don’t do as I did. I wanted too long. After 15 years on dual forearm crutches, I have fallen twice this year. The second fall was bad. Shattered my right hip and fractured my leg. Exacerbated the tear of my right rototaor cuff and some how did a face plant and fractured the right side of my face. Having OPMD and already being weak recovery has been very slow and very painful. The good news is I am now the proud owner of an electric wheelchair.